The Margie Steele Foundation believes that money for research will help find a cure so that future generations will be spared the heartbreak of Young Onset Alzheimer’s Disease. Young onset affects individuals younger than 65 and many, as Margie was, are in their 40's and 50's. They are in the midst of raising their families or in the middle of their careers. Getting an accurate diagnosis at such a young age can be a long and frustrating process. The slow deterioration of one's cognitive function and the subsequent inability to care for oneself continues on for a decade or more. It starts with inexplicable changes in behavior and slight memory issues and culminates with losing the ability to respond to one’s environment, to carry on a conversation and eventually, to control all movement, including walking and swallowing.
This illness disrupts the daily life for many, many years of the individual as well as the family. Beyond the devastating physical and emotional toll of witnessing this fatal brain disease, the family is responsible for managing the necessary long term 24 hour care. The cost of this care is exorbitant and not covered by insurance so many families will be financially wiped out in the process.
Young Onset Alzheimer's is an insidious disease that slowly unravels the mind and the self. It shakes families to the core and forces them to adapt in ways they never imagined.
More than 200,000 people in the US have Young Onset Alzheimer's
Please honor Margie's life and help us find a cure.
- Alzheimer's Disease is 100% fatal.
- Today more than 5 million Americans are living with Alzheimer's disease, including 200,000 who have young onset Alzheimer's.
- By 2050, as many as 16 million Americans will have the disease.
- Another American develops Alzheimer's every 68 seconds.
- By 2050, an American will develop the disease every 33 seconds.
- Alzheimer’s disease is the 6th leading cause of death in the United States.
- Alzheimer’s disease is the only cause of death among the top 10 in America without a way to prevent, cure, or even slow its progression.
- In 2013, 15.5 million caregivers provided an estimated 17.7 billion hours of unpaid care valued at more than $220 billion.
For more information about Alzheimer's disease and dementia symptoms, diagnosis, stages, treatment, care and support resources, please visit the Alzheimer's Association website: www.alz.org
My wife, Margie and I met in 1975 during our sophomore year at Babson College. We went on to marry, settled south of Boston and raised three beautiful children. We were married for 33 years, very much in love and enjoyed a wonderful life together. Margie was kind, giving and happy, devoted to her family and committed to helping others. She started the Cohasset Food Pantry in 1992. She was named 2006 Citizen of the Year by the Town of Cohasset for her selfless and generous service to her community.
Our family was forever changed when Margie was diagnosed with Young Onset Alzheimer’s Disease. Margie had symptoms in her mid-forties, was diagnosed in her early fifties and by age 55, she was in the late stages. She peacefully passed away in our home, just two weeks after her 58th birthday.
It is impossible to put into words what is was like to witness Margie's mind and her being unravel. As the foundation of who she was, slowly, relentlessly crumbled she slipped away from us. She slipped past our children's graduation, their first jobs and their weddings. Eventually, everyone and everything was forgotten and Margie completely lost herself. For me, every moment of every day was consumed with the logistics of caring for Margie and the accompanying fear, anger, sadness, loneliness, exhaustion and drama of it all. It is an indescribable, overwhelming experience. Alzheimer's robbed Margie of everything she had worked so hard for all her life. She lost both her past and her future. I lost my wife, my children lost their mother and the world lost a really good person.
Alzheimer's Disease devastated my family, and it will devastate millions of other families. It will certainly devastate someone you know - a spouse, parent, sibling, friend, co-worker or neighbor.
My children and I are deeply saddened with the loss of our beautiful Margie. We want to honor her and keep her memory alive. We are focusing our energy into raising awareness about Margie's illness and funding reasearch for developing a cure.
Please join us in honoring Margie and help us put an end to Alzheimer's Disease. Please make a donation today.
Major strides have been made in understanding how Alzheimer's affects the brain but there is still no treatment or cure. We must raise awareness about this epidemic in order to secure funding for research. Now is the time.
Grants will be presented to major memory care research centers including the Center for Alzheimer's Research and Treatment at Brigham and Woman's Hospital where Margie was a patient, the MIND's Genetics and Aging Research Unit at Massachusetts General Hospital and the Alzheimer’s Association.
Please donate by:
1) Credit card online at: www.cfsema.org/donors/donate-to-a-fund/donate
2) Checks payable to the “Margie Steele Foundation” and mailed to:
Margie Steele Foundation
c/o Community Foundation of Southeastern MA
63 Union St
New Bedford, MA 02740
All donations are tax deductible. The Margie Steele Foundation is a 501 (c) 3 organization operating under the umbrella of the CFSEMA.